Episode 5: Living with Narcolepsy

living with narcolepsyNarcolepsy can have significant impact on health and function, which can also affect work and family. Often in managing narcolepsy the focus is on medication, but medications are often only partially effective. Learning how to live with these ongoing symptoms and reduce their impact is an important part of living well with narcolepsy.

Dr Moira Junge (Health Psychologist) and Dr David Cunnington (Sleep Physician) host the monthly podcast, Sleep Talk, talking about all things sleep.

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For more information on narcolepsy, see our narcolepsy page and listen to episode 2 of Sleep Talk where we talk about narcolepsy diagnosis and treatment

Audio Timeline:

  • 00:00 – 00:48 Introduction
  • 00:48 –  04:14 What’s in the news about sleep?
  • 04:14 – 05:36 Theme introduction: Narcolepsy
  • 05:36 –  32:42 Guest interview – Jacqui Tomlins: Living with narcolepsy
  • 32:42 – 34:28 Clinical tip of the month – Build your own team
  • 34:28 – 36:05 Pick of the month: Moira – What makes a good life?
  • 36:05 – 37:47 Pick of the month: David – Waking, Dreaming, Being
  • 37:47 – 38:54 What’s coming up in the next month?

Next episode (May 9th 2016): Sleep in New Parents

Links mentioned in the podcast:

Presenters:

Guest interview:

Jacqueline TomlinsJacqui Tomlins was diagnosed with narcolepsy without cataplexy at the Melbourne Sleep Disorders Centre two years ago. Prior to that she attended the clinic for management of Restless Legs Syndrome and Sleep Apnoea. Jacqui recently spoken at the Australasian Sleep Association annual scientific meeting where she shared her experience of living with narcolepsy with sleep specialists, scientists, psychologists and researchers. Jacqui feels that the challenges of living with narcolepsy are not helped by the lack of reliable and accurate information about the condition, or by the myths and misinformation that circulate in the general population. Jacqui is an author, freelance writer and trainer and has spoken publicly on a range of social issues. She lives with her partner and three children in Melbourne.

Connect with Jacqui on Twitter or checkout her website.

Regular hosts:

Dr Moira Junge

Dr Moira Junge is a health psychologist working in the sleep field, who has considerable experience working with people with sleeping difficulties in a multidisciplinary practice using a team-based approach. Moira has consulted at Melbourne Sleep Disorders Centre since 2008, and is actively involved with the Australasian Sleep Association (ASA). She has presented numerous workshops for psychologists wanting to learn more about sleep disorders, and is involved with Monash University with teaching and supervision commitments, as well as clinical involvement with the Monash University Healthy Sleep Clinic. She is one of the clinic directors at Yarraville Health Group which was established in 1998. In addition to her expertise in sleep disorders, her other areas of interest and expertise include smoking cessation, psychological adjustment to chronic illness, and grief and loss issues.

Dr David CunningtonDr David Cunnington is a sleep physician and director of Melbourne Sleep Disorders Centre, and co-founder and contributor to SleepHub. David trained in sleep medicine both in Australia and in the United States, at Harvard Medical School, and is certified as both an International Sleep Medicine Specialist and International Behavioural Sleep Medicine Specialist. David’s clinical practice covers all areas of sleep medicine and he is actively involved in training health professionals in sleep. David is a regular media commentator on sleep, both in traditional media and social media, and blogs for the Huffington Post on sleep. David’s recent research has been in the area of non-drug, psychologically-based treatments such as cognitive behavioral therapy and mindfulness in managing insomnia, restless legs syndrome and other sleep disorders.

Connect with David on Twitter or Facebook.

Need more information about how you can sleep better?

At Sleephub we understand the struggle people endure with sleeping problems which is why we have created a comprehensive FAQs page with information for those seeking information about sleep disorders and potential solutions.

Check our resources or take our Sleep Wellness Quiz for a free assessment of elements that may be keeping you from a good night’s sleep.

 

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